I have CRPS that began in my left foot and has since spread to both feet and legs. I got a Boston Scientific spinal cord implant, and I couldn't be happier with the results. The procedure was done at UNC in North Carolina and has made a significant difference in my life. As a matter of fact, I just got it adjusted right before Thanksgiving.

I've learned that sugar is detrimental to managing this condition, so I've completely eliminated it from my diet. Staying active is crucial; walking is non-negotiable for me! One important thing I've discovered is that I need a neurologist who specializes in treating the symptoms of CRPS. I am still searching for one. Prioritize water aerobics and other forms of physical therapy to keep moving effectively.

Additionally, I've found that red meat contributes to inflammation, so I focus on white meat and fish instead. Gabapentin was ineffective in my case, so I recommend seeking out more effective options.

If you're looking for quality care, I advise you to connect with a teaching college specializing in pain management. Avoid any pain management facility that treats you like just another number; you need a provider who truly understands this complex disease.

I know it can feel like a daunting journey, but I've made significant progress since my diagnosis nearly five years ago. I reached out to the Mayo Clinic in Jacksonville, and their guidance has been invaluable. Remember, don’t stop moving—keep pushing forward!