I don’t know if your tumor has metastasized, but it wouldn’t be out of the realm of possibility. The key is to act quickly. A common path is to spread to the liver. For myself based on posts from others on this site, I asked my oncologist for an MRI. PET scans are good, but not always 100% in diagnostics has been my personal experience. For pancreatic cancer that has spread Gemticitamine and Abraxne and maybe Cisplatin (if you have BRCA/PALB and maybe other mutations that I’m not familiar with)are much less harsh but generally effective for most people experiencing metastasis like myself. Focused radiation is something you can add to the mix if you decide. Please also consider a second opinion, even by video, if you don’t feel like drs are responding to your needs. Which state do you live in? Others might be able to give you some recommendations for 2nd opinions on where to go.

Inflammation in the body is an alternative condition that can raise tumor markers like CA19-9, but it’s best I think in cases like cancer to rule out worst case scenario first. I’ll be praying for you that you get the results you need. I began GA chemo in January this year and now my CA19-9 is 16 and I feel great!