← Return to Still confused about tapering

Discussion

Still confused about tapering

Polymyalgia Rheumatica (PMR) | Last Active: Dec 18, 2024 | Replies (47)

Comment receiving replies
@sister2

Can you share your findings about using a gluten free diet? Did you start that before PMR?

Jump to this post


Replies to "Can you share your findings about using a gluten free diet? Did you start that before..."

Hi, I was not on a GF diet before PMR, it was a mostly healthy Mediterranean diet, lots of pasta, meat, fresh veg but I did eat pancakes, pastry and the odd bit of cake. I had a lot of heartburn, bloating and gut discomfort but thought it was due to a hiatus hernia and food combinations. Mentioned it numerous times to my GP but it was never suggested that I be tested for Celiac disease (a simple cheap blood test for gluten antibodies). Then I developed severe PMR and changed to a very strict anti-inflammatory diet. The removal of processed foods almost immediately stopped the quite severe gut problems I had been having for many years. I was on a low gluten diet for the first 12 months and it seemed to help reduce the PMR inflammation, if I slipped up the pain levels would increase. About 2 months ago my 7yr old grandson was diagnosed with definite celiac disease, his father, my son was then diagnosed and I'm pretty certain I also have it (The blood test doesn't work if you have been on a gluten free diet). Since then, I have been strictly gluten free and using celiac disease protocols for separating my food prep areas from my husband who is not GF. It has been a blessing to discover all this. My son and grandson were both very ill and it has made a huge difference to their lives to go GF. I am certain that it is helping me with my PMR, my inflammation levels are still a bit high but I could get more sugar out of my diet and I've been eating GF bread which I shouldn't be doing. I'm still reducing Prednisone and Hydroxychloroquine and finally feel like I can manage without the drugs apart from Paracetamol for the occasional arthritis pain.

Just a further note on the Gluten Free diet, if you think you may be sensitive to Gluten, get tested for Celiac disease first before going GF. It's a primary auto immune disease that can result in secondary auto immune conditions like PMR. It can take several months to years for the gut to heal from gluten damage and adhering to the diet is a lifelong commitment. The good news is that although the incidence of true celiac disease is fairly low, about 30% of the developed world population is tuning in to the damage wheat, rye and barley is doing to their body and GF is now a lucrative market for processed food manufacturers so food choices are increasing exponentially. The bad news is that a lot of GF food choices are pure starch, loaded with corn syrup and nutritionally deficient. For people with PMR, these foods can cause further inflammation