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@mnewland99

@carneydh
Congrats on catching your tumor in the early stages - that is key to fight this thing. Secondly is to have good oncology and surgical team and to be aware of what your mutations are as they signify the aggressiveness of the type you have and what treatment for drs to use. Mine are KRAS12D, TP53, and some type of ATM mutation. After my surgery and 12 cycles of fulfirnox chemo my cancer after 4.5 months without chemo came back as a lesion in my liver. These are difficult to see on a CT and easier to see on MRI, particularly when they are small. I’m now on GA chemo basically since January of this year (cisplatin was dropped from my chemo cocktail in September) and I received MRIdean radiation in October of this year for lesion on my liver). My CA19-9 went from a 6 to 3840 in 4.5 months. What is yours?

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Replies to "@carneydh Congrats on catching your tumor in the early stages - that is key to fight..."

My last chemo treatment was Oct. 30, 2024. My CA 19-9 was 35. Now it is 371.

Did you have any symptoms of your recurrence? Most of us get quarterly CT scans rather than MRIs so I wonder if we’re missing something.