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Pancreatic insufficiency ..No cause ?

Digestive Health | Last Active: Mar 20 5:07am | Replies (25)

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@dm661

I'm 55 and have had pancreas issues for over 10 years. It started with extreme pancreatic attacks that felt like I was literally dying. This stated a few years AFTER I had my gallbladder taken out. These attacks are extreme sharp pain in the upper abdomen that would come in waves, so bad that I'd pass out in a couple of cases (vagal). I learned to recognize and manage the pain when it'd start and this wasn't properly diagnosed as acute pancreatitis (non-alcoholic) until a couple of years ago when my blood work was done during a crisis and the very elevated levels of AST, Amylase (304!), Lipase (1544!!) were seen. My last episode was a little over a year ago and landed me at urgent care. What's weird is that the attack would happen then go away like nothing and I'd feel perfectly fine.

A month ago one morning, I started having diarrhea pretty bad and was chalking it up to some sushi I had the evening before but it kept going everyday and I noticed that it wasn't your typical food poisoning or upset stomach type diarrhea. So after seeing if it would pass after a week I had things checked out at urgent care and they referred me to the ER for a CT in case there was bile duct obstruction. There was none and everything looked clear and normal. It took another week plus to see my GI and he put me on Creon (36000 ), one pill before each main meal. It did help a bit in reducing the frequency of trips to the bathroom but wasn't making anything "normal." He increased the dose to double that for meals and 1 pill for snacking. I take 7-8 a day, and still, things aren't getting a whole lot better.

I welcome any advice on dieting with EPI. I haven't lost any significant weight, just 2-3 lbs from not eating like I usually do and staying away from anything excessively fatty but I'm finding it difficult to find foods that really help.

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Replies to "I'm 55 and have had pancreas issues for over 10 years. It started with extreme pancreatic..."

Hi! Sorry you’re suffering so much — it’s terribly frustrating! The only prescription that works perfectly for me is Zenpep, which is the most expensive one for EPI (no surprise; right?). My insurance required that I try all the less expensive ones for at least 30 days each before they approved Zenpep.