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Pancreatic Cancer Group: Introduce yourself and connect with others

Pancreatic Cancer | Last Active: 20 minutes ago | Replies (1429)
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@carneydh

Hi, my name is Dana.
I was diagnosed with stage I or II pancreatic cancer in June of 2023. It was approximately 2cm on the head of my pancreas. I did 3 months of chemo and had whipple surgery in January of 2024 at UCSF in San Francisco. All of the margins were clear after surgery. My surgeon wanted me to do another 3 months of chemo after the surgery. I did that and my tumor marker CA19-9 was normal at 35. My scans have been clear for 10 months. My oncologist decided to just watch it and do scans every 3 months. The problem is my CA 19-9 started to go up, and now my oncologist is suggesting more chemo, which I do not really want to do. Anyone else have this problem?

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Replies to "Hi, my name is Dana. I was diagnosed with stage I or II pancreatic cancer in..."
marienewland | @mnewland99 | 2 hours ago

@carneydh
Congrats on catching your tumor in the early stages - that is key to fight this thing. Secondly is to have good oncology and surgical team and to be aware of what your mutations are as they signify the aggressiveness of the type you have and what treatment for drs to use. Mine are KRAS12D, TP53, and some type of ATM mutation. After my surgery and 12 cycles of fulfirnox chemo my cancer after 4.5 months without chemo came back as a lesion in my liver. These are difficult to see on a CT and easier to see on MRI, particularly when they are small. I’m now on GA chemo basically since January of this year (cisplatin was dropped from my chemo cocktail in September) and I received MRIdean radiation in October of this year for lesion on my liver). My CA19-9 went from a 6 to 3840 in 4.5 months. What is yours?

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