← Return to My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Discussion
Comment receiving replies
@loribmt

Hi Mary! I appreciate your sending the healing vibes and hope to heck they’re stronger than the other vibes I’m getting today! 😂 Just starting day 3 of the Vancomycin and was hoping there would have been more of an improvement to, um, the plumbing issues! I did put in a call to my BMT care team again this morning so we’ll see what’s next on my ‘naughty list’ from Santa. Geez is right.

I don’t have a doctor/oncologist here but there’s a decent hosptial for emergencies and there are several Urgent Care facilities should the need arise. This morning, I’m uncharacteristically unsettled and let a few ‘what ifs’ sneak in. So I’m working on mindfulness to get my brain refocused. I think it was the abrupt change in plans and the added disappointment of missing the usual traditions of the holiday at home with our daughter. There are only the 3 of us, so we’re pretty tight but seldom get to see each other.
AND, of course, the extreme disappointment in having a flare of C-diff when I felt it was all under control. Blargh…

😂What you’re witnessing is my real-life 30 second meltdown. I seriously give myself 30 to 60 seconds to have a hissy fit and then move on. Accept, adapt and move forward is always in the background. But this is the little brown pile of emoji!! Hahaha.

On the other hand, as I joked with my husband, there are worse places than being stuck on the beach for the next few weeks! 😂 So I tossed a string of Christmas lights on the large fake palm tree in our condo. Yesterday I glued string to sea shells and hung those from the plant. We’re rolling with the holidays.

I hope you and Dane have a lovely holiday season. We all have so much for which to be thankful. A few little hiccups are nothing in the grand scheme of things.

🧑🏻‍🎄 Here’s a couple photos of the hardships we’re facing by not being home! 😂😂
The deep white powder! If you didn’t know better you’d swear it was snow, right?
And our “Christmas Palm”. Ho ho ho!

Jump to this post


Replies to "Hi Mary! I appreciate your sending the healing vibes and hope to heck they’re stronger than..."

Good morning Lori,
I can only imagine how unsettling setbacks are for you, given our shared experiences. I truly hope the Vanco starts turning things around asap! You are the poster child for resilience and joy, no matter what life throws at you. Your generous spirit leaps off the page and into our hearts!
I love the scenes of your world at the moment, symbols of light and peace, especially apropos of the season. Boy that beach is amazing!! Love it!
Thank you for sharing!
I know you will miss being with your daughter, but hope you can make a plan for another visit soon that wasn’t already on the calendar! Something to look forward to!

Keep us posted on how you are doing.

We count you among our greatest blessing this year Lori. Your hand outreached to us in the dark many months ago was an answer to our prayers and we are deeply grateful to you for your incredible support.

Peace,
Mary and Dane

Hope you are feeling better soon! Being sick and seeing sunshine definitely beats being snowed in and seeing gray everywhere!

I have never had C-diff, but I know it’s a nasty thing. Enjoy your quiet holidays!