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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 19 hours ago | Replies (862)

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@skullbasecancer4

May I ask what trial drug are you trying ? The doctors are suggesting Ivosidenib , since his is not operable for a Chondrosacroma of the skull .

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Replies to "May I ask what trial drug are you trying ? The doctors are suggesting Ivosidenib ,..."

Ivosidenib requires patient to have the mutation of the IDH1 gene. Success for leukaemia and bile duct. Cancer. It did not work for me sadly. Chondrosarcoma pretty much everywhere.