I’m so sorry for your loss and that your poor grandma had to suffer for so long before anyone would actually pay attention and help her. Our healthcare system needs so much work/improvement. So yes, my mom has tried I think oxcarbazepine and/or possibly carbamazepine. My mom is a tiny lady who is vegetarian and doesn’t eat much very much anyways, but it’s the same with her….horrible pain when she tries to eat, drink water, brush her teeth, etc. She just had the flu and I think that the virus increased her inflammation causing the trigeminal neuralgia to flare up. I just spoke with her last night and she said it had improved and she’s recovering from the flu. So it seems like it’s improving now that the virus is maybe getting out of her system. However, she does need to find a solution to this problem because she also has Sjogrens Dz which I’m sure doesn’t help things. She also had Hep C that she contracted from a blood transfusion in the 80s so she has a lot of neuropathy from that. She’s very stubborn when it comes to caring for herself, unfortunately, and I live in CO and she lives in TN which limits my ability to do anything to help her. I’m an RN, but all I can do is advise her and then it’s up to her to follow through. It’s very frustrating. This disease is so strange. It just popped up out of nowhere around 6-7 years ago. Just like with your poor grandma, it took a while for them to figure out what was going on and then still she hasn’t gotten the best care/treatment for it. No one has even talked to her about exercises that might help. I’ll share that with her and what you said about alternating hot and cold on the face. Thank you so much for your response!