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DiscussionDoes anyone have a solution to help manage Reclast side effects?
Osteoporosis & Bone Health | Last Active: Dec 19, 2024 | Replies (331)Comment receiving replies
Replies to "@susanjane77 the statistics I have seen would seem to indicate that the risk is still rather..."
I am in this position right now. I am due for my 13th Prolia shot -- I've been on it for 6 years. I had a failed bridge last year, which resulted in an extraction and a bone graft. Although that part went fine, 4 months after my June Prolia shot this year, my oral surgeon placed two implants in the area and they both failed, with bone starting to erupt through the gum line. My oral surgeon removed the implants immediately so I could heal. I am now in one of the worst catch-22 positions of my life. I was supposed to go on Reclast to transition off of Prolia, for at least one year, possibly two, with dental work proceeding after that. But, with the early onset of ONJ I am no longer a candidate for Reclast, and may have to go on HRT (Evista). I don't think this drug is strong enough to prevent the rebound effect of Prolia, especially with as many years as I have been on this drug. My most recent dexa scores indicate I have now moved to osteopenia range in all categories and the diagnosis is no longer osteoporosis. I realize this is from taking Prolia and if I go off the drug, I am at risk to return to osteoporosis levels. It is a quandary for me because I am also scheduled for a knee replacement in February. What will happen if I go off Prolia without taking another drug? I have never had any fractures, even though I have fallen multiple times during the course of the last 10 years. I know it's against advice to just go off Prolia cold turkey but I'm not sure what other options I have now. I also started the workout at osteo strong about a month ago, but I think if I go off Prolia completely or even if I transition to a less effective drug, I may have to quit osteo strong because of the risk of vertebrae fractures. I have read so much literature and have looked at so many videos and still have no clear understanding of what to do but I'm running out of time because I was due for my Prolia shot December 15th. I'm not getting any clear direction from the bone health specialist that I've been seeing. I do have an appointment with an endocrinologist in january, so maybe I will get some help then? Also, since I've been on this forum I have read about CTX blood test and I had never had one, even though the bone health specialist knew I was facing very involved dental work. I'm at a loss as to why this blood test was not ordered for me? So many questions so little answers.
I do not understand where you are coming from. I appreciate your note but you are NOT my doctor! Not every statistic is proven and as I mentioned here once, you can only be on Reclast for so many years. I have been told this twice by two endocrinologists I have seen. My time with up and my doctor and I discussed all the options and we chose Prolia and I am sticking with it. If my DEXA scores in a year do not show improvement, then I will have another discussion with my doctor.
By the way, do you know the cost of Evenity and not many insurance companies cover it but that is besides the point. If my doctor thought Evenity was better than Prolia, I would have gladly paid out of pocket.
I hope this satisfies your curiosity and I really dont care to explain it again. All the best.