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Trigeminal neuralgia with Sjogrens disease
Autoimmune Diseases | Last Active: 20 hours ago | Replies (9)Comment receiving replies
As a Sjogren's sufferer who doesn't have trigemnimal pain but who does take pregambin for spinal arthritis' I would caution her to start at the lowest dose possible and taper up to see how she reacts. Some people don't need very much of the drug to get some relief as compaired to the side effects, which can make a person not have anything to do with them. Some docs seem to want to rush the patient to start out with a high dose, and this doesn't work for everyone. Use her own judgement on how fast to taper up. Slow is better. I hope she finds relief soon. It must be awful for her. It would probably be a pain specialist who would help and then she can explore the cause. Best Wishes.
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Thank you so much. I’m sorry you have Sjogrens. That’s not a fun disease to have either. I have chronic active sarcoidosis and it’s a nightmare. I 100% agree! I’m trying to get her to talk to her doctor about prescribing a dose of either carbamazepine or oxcarbazepine that is maybe a quarter of the lowest possible available dose and see how that goes, but it’s up to her to ask them and idk that she will. She can be very stubborn when it comes to her own healthcare. I don’t understand why parents become so difficult about their own care as they get older. They teach us to care for ourselves and not ignore things and then they do exactly that! It’s so frustrating! I wish you well too and thank you for your input.