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How do you cope with Mixed Connective Tissue Disease (MCTD)?
Autoimmune Diseases | Last Active: 2 days ago | Replies (140)Comment receiving replies
A nine month glare...GOD ALMIGHTY !! That sounds like hell. Plaquinil and Aleve , hot showers, tramadol , heating pad, all help me. However, nothing helps the chronic fatigue except temporarily and unfortunately that's my most debilitating symptom. Everything that used to be fun I now have to force myself to do. However, you have my best wishes, as you certainly have it worse than me. I guess I should stop whining and be grateful, LOL.
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I appreciate your response. I can't deny that I believe i have a very healthy dose unfortunately... same as my gma and dad. Since my first presentation like 10 months ago I personally can not deny that I have: lupus, scleroderma, RA, myositis...... and i know Sjogrrns csn have overlapping symptoms ... my gma had it and they were my first symptoms so I may as well include that as well... I have a medical background that has helped me greatly in trying to tease this all apart that I am grateful for. It sounds very uncommon to break through a flare without meds. It has been alot of work and adjusting... everything from eating a high dose of cocoa and high polyphenol olive oil to the resolute use of eating chicken to avoid face and nose sores from breaking through.... along with supplements, a very good diet, exercise and sleep. I have a terrible sensitivity to lectins so struggle getting grains that I believe assist in energy production. I have tried soaking and pressure cooking. Im still working so I'm dealing but feel underaccomplished. Sorry - talking your ear off