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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: 4 hours ago | Replies (414)

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@laurenseavertson

forgot to say Medical Marijuana helps me a lot. I eat gummies. However, it's very expensive & of course, not covered by Medicare. My pain doc, told me to use it! Guess, now that's it's legal, both Medical & recreational, they can't do anything. Hope your state has it!

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Replies to "forgot to say Medical Marijuana helps me a lot. I eat gummies. However, it's very expensive..."

Yes. It's legal in VA . But needing to get a medical card just in case bc you can walk into any stores here to purchase it but I don't trust I'm not going to end up getting fentyal and die . I'd rather have what a Dr would prescribe to be on safe side. I have tried gummies and yes they help . I live in VA but went to Dr which TN and VA are just on opposite sides of streets ( no joke. Walk on one side it's VA cross the street it's TN) I went to pain management on TN side and test w slight amount of thc on my screen , Dr was so interested in that , he didn't look at MRI ( in April 24 ) to see radiologist had flagged it and didn't tell me of arachnoiditis. I went to my primary and told her I was seeking home help and needed a diagnosis so she seen the arachnoiditis and this was last month. Nov, and asked why the Dr who ordered mri wasn't upfront about this serious condition needless to say she was furious I had suffered so long wo knowing , I haven't used gummies marj etc since the Dr said it's legal in VA but not TN so I quit to get help , I went back knowing in 7 months there should have no trace of thc in my system . Well guess what? Got to return again ..... it's a drain your insurance racket .
She also said the meds I'm on is too much and if ( big if ) she changed it then she would put me on slow release ( acting) meds .... been there. It doesn't work. I have used morphine , fenyal patches, oxycoton , etc only w so much vomiting I wasn't able to care for my preteen son
I had to go back to lower meds just to be able to get him to school back from school to after school activities etc wo killing someone so I suffers til I returned home at night to get my meds and start all over next day .

Today I used my first cath to finish draining my bladder. I was so proud of myself , I know it may sound small but I hadn't been taught but I learned having taken nursing classes in my past , I was happy I was able to do this .

As far as bowel issues I have had gastro Dr tell me I have hardly any spincter muscles left but I still try my best to try to go , only it comes out as gas , after usually 3- 4 days I will take a laxative 2 if it goes over 5 days but yes it's humiliating not to make it to bathroom and wear a mess. I cry but I know atleast it's out and I can relax for another few days. I try not to eat certain things bc it does build gas and I try to eat healthy but when you can't stand for long it's hard to cook 3 course meals.

I miss my gummies but if when I return to pain management if they refuse to help I'm done w them and will stay w my primary care who seems to know about this disease and is willing to help me.

I actually was so proud of using that cath I walked from my bathroom to my living room wo my walker wo thinking. I started to get up and asked my cleaner where my walker was , needless to say I was shocked and happy I had done this.

I pray for you all. Try to be happy even w the smallest things you gave to be grateful for. The Lird blesses me each day to still get up out of bed , I have a bed , a roof over my head , and running water , I'm just praying I'm approved of this young lady helping me w cleaning and daily things , if not I suppose I will have to pay her out of pocket for few days a week.

I hope this long winded message helps someone but I am also fearing total loss of my bowels.
Thank you for understanding
Sherry.