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Microscopic Colitis Relapse Rate Question

Digestive Health | Last Active: 4 hours ago | Replies (5)

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@ejo

Thank you for sharing. I was able to get to 3mg every other day and stayed there for a year before getting off completely. My only caution is to challenge the doctors who say Budesonide is safe for long-term use. They have no clinical proof of that beyond a couple of years - only anecdotal evidence. In my case, I did a bone density scan when I started the drug and another after two years. I lost 12% of my density during that short period which is significant and if allowed to continue, dangerous. Make sure you are monitoring for that if you decide to stay at 3mg for the long term.

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Replies to "Thank you for sharing. I was able to get to 3mg every other day and stayed..."

Because I have osteopenia, I have been getting DEXA scans every two years. The last one, done this past April, showed an improvement in my bone density after 6 months on Budesonide. On my doctor's recommendation, I have been supplementing with 1500 mg calcium daily since starting Budesonide. For the first time since I started getting DEXA scans in 2012, my T scores are normal everywhere except in my left wrist. Next scan will be in April, 2026.