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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 2 days ago | Replies (590)Comment receiving replies
Hi Kat, LOL I’ve often had a death grip on the box of chocolates designated for someone else!! Tough to let go…gimme gimme! 😂
It has to feel pretty encouraging being back at work! When was your first day back? Are you full time now or can you hit and miss for a while? Cringing with the news that your assistant had a cold though! I know what a gut punch that can feel like. I have a momentary clench of panic when I encounter someone who’s sick and hadn’t anticipated that scenario. I find myself going through a quick checklist of…did I have my mask on, did I touch my face, rub my eyes?
We were in a grocery store the other morning. It was basically empty so I wasn’t wearing a mask. But I turned down an aisle and there was a group of people standing and chatting…and coughing!! I quietly turned around, put on my mask and avoided that aisle. Problem is, they were standing right in front of an item I needed! 😆 Finished all the other items on the list then circled back and they were gone. But lesson learned, not to let my guard down. Masks really do work!
Sounds like you’re riding solo for the holidays this year. I like your plan of grabbing a friend and hanging out looking at lights! That’s always fun. Our plans to spend the holidays at home in the Northwoods of Wis with our daughter this year got derailed. We drive instead of fly so it’s a 1,250 mile trip (2.5 days) home. On the first day of travel I realized that my nemesis, C-Diff decided to make a visit!! 😳 So the first night we spent at a hotel and then reversed the trip and hightailed it back to our condo in Florida. Called my BMT team and my doctor sent a prescription to our pharmacy there! Meds were waiting for me when we drove into town so, phew…but that means we’re here for the holidays and our daughter is on her own this year. We offered to fly her down here but she was just with us for a week at Thanksgiving. So she’s spending the time with friends, baking cookies and taking in holiday events. She came up with a plan for us making a meal together via FaceTime. Then eating with our computers on the table so we can be a united family. We’ve done that before when I was in isolation with the transplant and some holidays when Covid was prevalent. Anyway, we’re nothing if not adaptable, right?
Always good catching up with you, Kat! You’re always a ray of sunshine! Hugs.
Replies to "Hi Kat, LOL I’ve often had a death grip on the box of chocolates designated for..."
Lori,
I also bought the creams at See's Candy. Those would be far more tempting than the mixed box. A friend of mine also brings chocolates for her med team. These they can share.
For work, I just snuck in the one day for a training class we do as i KNEW the student worker hired was not going to get it right. She did not as she arrived 30 minutes late for set up waiting for the babysitter. I then stayed longer to straighten up and all that jazz. The office held their 2nd Christmas event for foster kids and their parents. It is such fun. I wish i could have gone but i only stopped by to take a picture of a couple of the In N Out Staff!!! The training team for that class has a big complainer, so I needed to make sure the class was up and running for her.
Since my white cells had dropped, I figured not to ask the Dr until after January 10th.
If he says good, the numbers are good, then I will ask him.
I had to look up C-diff. That is cruddy. This site keeps me focused on the fact that i am not at 9 months past my transplant. I am not healed. I am healing and must take care every day. I am baking a bunch of sweets for our campus safety guys. This lets me have a few but give all away.
I am taking Friday off to go do something fun in Orange County. Not sure yet, but something outdoors and where Christmas decorations are in abundance.
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Hi @loribmt !
Geez, I’m sorry to hear about your sudden change in plans! Yes, if we are nothing, we are adaptable and resilient.
I’m sure you are disappointed not to see your daughter over the holidays. That’s a bummer. But I love your plan to cook a meal and eat together over video. It’s a skill we picked up in our house as well. Along with mask wearing and hand washing, that serves us well especially now, they are remnants of Covid times we appreciate.
Do you have a local oncologist in Florida as well in case you need in person care? It’s great that you are able to live your best life part time in Florida, the north woods of Wi and home! But it all takes planning and thought, right?
I sure do hope you are feeling better asap! I know what a pain C Diff can be as my sister who had an auto stem cell transplant (NH Lymphoma) 15 years ago, has flare ups from time to time.
As I wrote this the sun is just starting to brighten the sky and it’s a new day. Hope you and your husband enjoy beautiful sunrises and sunsets over the holidays in those beautiful Florida skies.
Sending healing vibes…
Mary