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Intermittent Hormone Therapy (IHT): How is it working for you?
Prostate Cancer | Last Active: 13 hours ago | Replies (16)Comment receiving replies
Happy to post publicly, I just didn't think of it for some reason...I guess in my brain this is already scattered all over the forums...
I never saw a Decipher Score, don't think one was done. Right before surgery my PSA was 13 and my Gleason score was 7 (4+3). My MRI showed nothing outside of the prostate.
09/02/21 Surgery
Post surgery lab showed "Perineural invasion, and Lymphovascular invasion Stage pT2c" the right pelvic lymph node was removed as well, that was completely negative.
Post surgery I saw these PSA results:
01/26/22 0.039 (Share's high fives with surgeon who tells me "we got it")
04/26/22 0.091 (Get's that "uh oh" look from the surgeon)
This caused a PSMA PET which was negative.
Started Radiation / ADT and had these results The last two columns are total and free testosterone.
08/17/22 0.014
11/28/22 < 0.006
02/07/23 < 0.006
06/09/23 < 0.006
09/09/23 < 0.006
11/30/23 < 0.006
03/07/24 < 0.006
06/03/24 < 0.006 3 0.8
08/23/24 < 0.006
11/09/24 < 0.006 82 2
Stopped ADT on June 1, 2024 and the doc is ready to go to 6 mos check ups now.
So... 4/26/22 is why I might be a little pessimistic 🙂
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This disease is a real head scratcher….My diagnosis was almost identical to yours: No Decipher test, Gleason 4+3(unfavorable), no spread with PET, extensive PNI - but NO lymphatic involvement.
I had surgery and it took a full 5 yrs for the PSA to hit .18…yours recurred much faster.
We both had salvage radiation and I’m on ADT for six months and you’re on for 24 months. Of course, time will tell if 6 mos is enough for me as they will do PSA every 3 mos….sure hope so!
But your rapid rise in PSA post surgery has to speak to the more aggressive variety as opposed to mine, which took 5 years. Too bad we did not have Decipher Scores - that might have solved the riddle.
But I do feel your longer course of ADT was a real life saver!