Prostate Treatment At The World's Greatest Clinic . . .

I had a prostatectomy at the Mayo Clinic on February 26, 2024. I came to the Mayo Clinic after seeking medical help from our local urologist for 1 year. The Mayo Clinic did a CT scan and an MRI (among other tests) and declared that I did NOT have prostate cancer. I was offered TURP surgery. When I said that I didn't think that would help (I had already had the equivalent of TURP surgery locally), I was told, "We're offering you TURP surgery, TAKE IT, OR LEAVE IT!"
I not only had TURP surgery once, but . . . TWICE at the Mayo Clinic. After the second TURP surgery (a year after I had come and TWO years after I had first sought treatment), when the pathology came back, I was told, "You DO have prostate cancer!" Not just ANY prostate cancer, but cancer so rare that according to TWO Mayo Clinic surgeons, there were only 32 reported cases in medical literature (Mucinous Adenocarcinoma of the prostate).
I was NOT offered the privilege of seeing an oncologist, and . . . I was told that not only would I have to have my prostate removed, but also my bladder and to have diversionary surgery to accommodate an abdominal bag for my urine (urostomy). NO explanation was given about the need for the surgery, or what difficulties I might expect afterwards living in a remote rural area with no resident urologist.
I said, "You can remove my prostate, but . . . NOT my bladder!" The first surgeon who was assigned by the Mayo Clinic told me that he could NOT go against the findings of the Mayo Clinic Tumor Board. He reached out to a colleague, who said that HE would do it!
When the urinary catheter was removed eight days after prostatectomy, the nurse said words to the effect, "This is all very strange. Usually, I have a Gleason score and follow up recommendations. I have NONE of that, for you!"
Essentially, I have been given NO follow up. I was misdiagnosed at the outset, given TWO unnecessary TURP surgeries (which contributed to my incontinence following the prostatectomy), given no explanation for the suggested treatment (prostate AND bladder removal and urostomy), and not offered the services of an oncologist -- at the World's Greatest Clinic! When I suggested to the surgeon performing the prostatectomy that we meet to see if we could assist future sufferers of this affliction with finding a diagnosis, I was . . . IGNORED.