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DiscussionCan’t regulate body temperature.
Autoimmune Diseases | Last Active: May 26 11:19am | Replies (24)Comment receiving replies
Replies to "I stay freezing since my neuropathy has became worse. Total hysterectomy in 2019 onHRT hormones (..."
My rheumatologist dropped me too. If they can’t figure it out in their tunnel vision they dismiss you in pain. I knew I had PMR, but since only my primary saw me during the attack and she ganpve me prednisone, the rheumatologist tried to wean me off prednisone too fast. He said sero negative arthritis. Because of him I had a major flare.
I test negative for rhemotoid arthritis. Honestly, I don’t think anyone really knows what I have, but I know this is all from the covid first 2 vaccines. I’ve been on prednisone low dose 7 mg for 3 years with ups and downs, can’t get lower than that.
I am having incredible night sweats. Wake up soaking wet then freezing to death. I start getting cold in the late afternoon. No change in temperature in house. I have RA and dermatomyositis. I am currently on methotrexate, IVIG infusions twice a month, Rinvoq, tramodol, synthroid, NP thyroid. Have been off of steroids for about 8 months after low dose usage for 11 years straight. Occasional high doses during flares. Constant sores in my nose and daily nose bleeds borderline anemic. I feel you pain I hope we can both get some relief soon