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Can’t regulate body temperature.

Autoimmune Diseases | Last Active: May 26 11:19am | Replies (24)

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@artemis1886

I stay freezing since my neuropathy has became worse. Total hysterectomy in 2019 onHRT hormones ( progesterone 250SR, estrogen and testosterone cream 12 meq twicea day). As my neuropathy has became worse my body does not regulate my body temperature. My temperature has always been 97.5 still the same but it can be 105 in Texas and I am wearing a cardigan sweater I constantly carry in my car.
Diagnosis severe axonal sensorimotor poly peripheral neuropathy, dysautonomia, small fiber neuropathy,
Cardiac autonomic neuropathy, asthma, sjogrens, lupus. Just an fyi motor neuropathy causes tremors. My seizures has been linked to my seizures.
Along with RA and Elenor’s danlos a connective disorder, spinal bifida. All my inflammatory markers elevated but test negative for everything which don’t make much sense. I have the lupus rash and ultrasound shows stage 3 rheumatoid arthritis nodules. The doctor tried to tell meI was seronegative RA but read up on RA you can only have the nodules if you are positive now he is mad at me telling me I am too complicated and he is dropping me as a patient. Welcome to RA doctor verses the RN not a good match.

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Replies to "I stay freezing since my neuropathy has became worse. Total hysterectomy in 2019 onHRT hormones (..."

I am having incredible night sweats. Wake up soaking wet then freezing to death. I start getting cold in the late afternoon. No change in temperature in house. I have RA and dermatomyositis. I am currently on methotrexate, IVIG infusions twice a month, Rinvoq, tramodol, synthroid, NP thyroid. Have been off of steroids for about 8 months after low dose usage for 11 years straight. Occasional high doses during flares. Constant sores in my nose and daily nose bleeds borderline anemic. I feel you pain I hope we can both get some relief soon

My rheumatologist dropped me too. If they can’t figure it out in their tunnel vision they dismiss you in pain. I knew I had PMR, but since only my primary saw me during the attack and she ganpve me prednisone, the rheumatologist tried to wean me off prednisone too fast. He said sero negative arthritis. Because of him I had a major flare.
I test negative for rhemotoid arthritis. Honestly, I don’t think anyone really knows what I have, but I know this is all from the covid first 2 vaccines. I’ve been on prednisone low dose 7 mg for 3 years with ups and downs, can’t get lower than that.