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PSMA Scan

Prostate Cancer | Last Active: 3 hours ago | Replies (23)

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@stew80

It's PI-RADs 5 for the large one and PI-RADS 4 for the other one. Pretty sure it's cancer. My biggest concern is whether it's local or more widespread. It might be March or April before I may get a PSMA scan. PC may be slow growing, but it's definitely growing. So, the bottom line is wondering if I should advocate and pay for a scan earlier and at least know the status if it has spread. I don't think I need approval as long as I'm paying.
The process with the Prostate Center here is, and has been - PSA test (high), wait 3 months, another PSA test (a bit higher, but not doubled), one more PSA test after 3 months (trending higher), wait a few months for an MRI, then wait 2 or 3 more months for a biopsy, wait 2 - 3 weeks before attending a required information session on PC treatment options, wait 2-3 weeks to finally see a urologist (that hopefully includes an oncologist) to discuss results and next steps, wait a few more weeks to begin any treatment options which may include a PET scan. This is 18 months from the initial high PSA (12.3) before any treatment action might begin. Who knows how long it was growing before the first PSA test. Probably years. Anyway, I guess I'm just frustrated with the waiting. The irony is because of age they wouldn't screen me and I had to lie about my age to get the first PSA test. It was a bit of a lark. In hindsight with no test I'd be oblivious to anything prostate and my first symptom could have been stage 4.

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Replies to "It's PI-RADs 5 for the large one and PI-RADS 4 for the other one. Pretty sure..."

Where are you?

I hear where you are coming from. I paid for a PET 5 yrs ago after my biopsy because I thought it would help in my treatment decision.
If the scan showed it was already out of the gland, why do surgery as I would need radiation anyway? If not, I would do surgery, which I did.
But even with all that I still needed salvage radiation so scans don’t see everything - especially micro metastases. But I still think it was valuable in my decision and I would do it the same way again if weighing surgery vs radiation - especially today with high and low brachytherapy treatment being combined with SBRT. A lot of options out there!