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Intermittent Hormone Therapy (IHT): How is it working for you?
Prostate Cancer | Last Active: 4 hours ago | Replies (16)Comment receiving replies
Nothing with this disease is crystal clear - ever! - not even the PET Scans. @web265 had surgery, radiation and 2 yrs ADT - a LOT of treatment to endure; but so far his results look extremely good. He did not specify his PSA or Decipher Score so we can’t know if there can be an apples to apples comparison. ((Perhaps you can send a private message?)
But my point was if your Decipher Score was .98 with a Gleason 9, that is pretty aggressive disease and probably calls for more aggressive measures.
Of course you don’t want to hear that - I wouldn’t! - but what happens if you go off ADT too soon and your disease comes back? Or spreads?
Then you’ll be on it even longer with other meds that will really mess with your body.
I guess you’ll have to finish your consults and take it from there, right? In the end it is your decision alone that matters - just like taking supplemental T. You are informed of the risk/benefit ratio and then you go with it. Best…
Replies to "Nothing with this disease is crystal clear - ever! - not even the PET Scans. @web265..."
Happy to post publicly, I just didn't think of it for some reason...I guess in my brain this is already scattered all over the forums...
I never saw a Decipher Score, don't think one was done. Right before surgery my PSA was 13 and my Gleason score was 7 (4+3). My MRI showed nothing outside of the prostate.
09/02/21 Surgery
Post surgery lab showed "Perineural invasion, and Lymphovascular invasion Stage pT2c" the right pelvic lymph node was removed as well, that was completely negative.
Post surgery I saw these PSA results:
01/26/22 0.039 (Share's high fives with surgeon who tells me "we got it")
04/26/22 0.091 (Get's that "uh oh" look from the surgeon)
This caused a PSMA PET which was negative.
Started Radiation / ADT and had these results The last two columns are total and free testosterone.
08/17/22 0.014
11/28/22 < 0.006
02/07/23 < 0.006
06/09/23 < 0.006
09/09/23 < 0.006
11/30/23 < 0.006
03/07/24 < 0.006
06/03/24 < 0.006 3 0.8
08/23/24 < 0.006
11/09/24 < 0.006 82 2
Stopped ADT on June 1, 2024 and the doc is ready to go to 6 mos check ups now.
So... 4/26/22 is why I might be a little pessimistic 🙂
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I want to hear all the opinions and I value them. That is why I am here. I am not going to rush into stopping Hormone Therapy.
Thank You for your input.