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After remission ... has anyone discontinued Actemra or Kevzara?

Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 3:45pm | Replies (28)
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@jenbillig

14 years ago my husband woke up blind in one eye. No symptoms at all. It turns out he had GCA ( confirmed by subsequent biopsy) he never regained his eye sight and the GCA simply went away.
Go figure.

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Replies to "14 years ago my husband woke up blind in one eye. No symptoms at all. It..."
cbtcparke | @cbtcparke | Jan 22 6:31pm

I also woke up blind one day in my right eye. Temporal biopsy was negative. C surgeon did not take a large enough sample of artery . Turned out I had GCA. Was on pred for ten mos. Gradually weaned off and. Now on Actemra. Very expensive

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