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After remission ... has anyone discontinued Actemra or Kevzara?
Polymyalgia Rheumatica (PMR) | Last Active: Jun 30, 2025 | Replies (29)Comment receiving replies
14 years ago my husband woke up blind in one eye. No symptoms at all. It turns out he had GCA ( confirmed by subsequent biopsy) he never regained his eye sight and the GCA simply went away.
Go figure.
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I also woke up blind one day in my right eye. Temporal biopsy was negative. C surgeon did not take a large enough sample of artery . Turned out I had GCA. Was on pred for ten mos. Gradually weaned off and. Now on Actemra. Very expensive