← Return to What’s left after my cure for nasopharyngeal cancer

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@josk

Hear you .. it is sad that others perceived us as 'normal' - not knowing and/or understanding our invisible disabilities - hearing loss, difficulty in swallowing, speech slurring --- all these makes it difficult in mixing and mingling with friends, families, and social groups. In fact, since diagnosed with these late effects in mid-2020 - my lifestyle has taken on a complete U-Turn.
Even going to the store to look for an item - it's frustrating to ask for help, and it's just as frustrating for the service rep to assist when my speech is slurry and hard for her/her to fully get what I am looking for - and this is one of the many challenges of the late side effects of HNC treatment!
Am trying to adapt and take one day at a time - and just have to wait and see how it goes onwards!

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Replies to "Hear you .. it is sad that others perceived us as 'normal' - not knowing and/or..."

Wear that survivor badge proudly! You don’t owe anyone any explanation for why you can’t speak properly. Fight the urge to isolate yourself. You’ll find people who don’t judge or accept that it’s your right to live and enjoy your life! If you don’t you still have lost the battle. Why did you fight your way through in treatment if you’re going to let the aftermath of treatment take you down? F cancer and all that comes with it. LIVE baby-Live 😘