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After remission ... has anyone discontinued Actemra or Kevzara?

Polymyalgia Rheumatica (PMR) | Last Active: Dec 17, 2024 | Replies (20)
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@linda7

As I understand it someone did research and did scans or ultrasounds of some arteries of patients with PMR and found changes that looked like GCA but the patients did not have symptoms. I do have one of the symptoms, a headache at my temple that wraps partway around my eye, but a negative temporal artery biopsy. Who knows what is going on with this disease!

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Replies to "As I understand it someone did research and did scans or ultrasounds of some arteries of..."
jenbillig | @jenbillig | Dec 15, 2024

14 years ago my husband woke up blind in one eye. No symptoms at all. It turns out he had GCA ( confirmed by subsequent biopsy) he never regained his eye sight and the GCA simply went away.
Go figure.

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sloped483 | @sloped483 | Dec 16, 2024

High eye pressure (IOP) or glaucoma can cause a headache and eye pain as a prednisone side effect.

I was diagnosed with high IOP due to prednisone and will require laser surgery instead as I cannot tolerate eye drops where one type literally sent me to the ER.

Ophthalmologist says no more drops for me.

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