← Return to Living with Neuroendocrine NETS, any advice?

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@kim1965

I have not heard where PRRTwas your first course of treatment, then CAP/TEM. Of course we are not doctors, our case was similar but different order of treatment. Started with Lanreoride, CAP/TEM, surgery, then 2 treatments of PRRT. This knocked down the tumors to only in liver. Considering your question the side effects your experiencing are similar to what she experienced. Check for threads in this forum that help in the side effects your having. You got this!

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Replies to "I have not heard where PRRTwas your first course of treatment, then CAP/TEM. Of course we..."

PRRT came first because I was in a trial. I'm lucky the CAPTEM is working. Thank you!