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Patella Instability Solutions?
Bones, Joints & Muscles | Last Active: 1 day ago | Replies (2)Comment receiving replies
@pollyannaeyler Welcome to Mayo Connect, that is quite an unusual situation. Since you have been dealing with it your entire life, you probably already are aware that many orthopedic surgeons who concentrate on TKR are not necessarily familiar with Ehlers-Danlos Syndrome.
Not being a surgeon, but understanding the difference in recoveries for the two surgeries, my layman's guess is that you are going to need two separate surgeries, some months apart, to correct both issues. I realize that sounds awful, and you want to find a possible way to accomplish both.
It sounds to me like you need to seek care at a major orthopedic hospital, possibly associated with a university, or perhaps at a Mayo Clinic. (Contact http://mayocl.in/1mtmR63 )
Have you tried finding an innovative practice specializing in complex cases?
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Thank you Sue!
Yes, I reached out to every Orthopedic surgeon in my county and those near me. I found just a handful, one newer surgeon has agreed to try both simultaneously, MayovClinic's website recommended finding an experienced surgeon. It took a couple of months, but I have an appointment this week with a surgeon in my home state at University of Utah. I have also recently filled out the online paperwork for an appointment with Mayo Clinic's Patella Instability Clinic in Minneapolis, but they need to retrieve my records & I have not received word if they will take my case.
I'm grateful for options & hopeful that one of these will help me for now ... but my posterity & others really need a better solution for the future.
Thank you again for your volunteer help,
Pollyanna ☺️