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Living with Neuroendocrine NETS, any advice?

Neuroendocrine Tumors (NETs) | Last Active: 4 hours ago | Replies (63)
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@lu7

You've definitely had a tougher time! Did you ever talk to palliative care folks to help with some of the side effects? You had such GI issues you probably had to stay focused on that! You're right, find the joy!

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Replies to "You've definitely had a tougher time! Did you ever talk to palliative care folks to help..."
kevinmonroemi | @kevinmonroemi | Dec 15, 2024

I’ve had excellent care! Been palliative care since diagnosis. I go to University of Michigan Medical center I live 30 miles away. GI care was a real challenge I’ve had about 10 endoscopy’s with dilations. I take a lot of proton pump inhibitors and sulcrafate daily

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