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Support For Those Quitting Prolia

Osteoporosis & Bone Health | Last Active: 1 day ago | Replies (152)

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@windyshores

Evenity- at least a few months of it before it becomes anti-resorptive- might be of help in situations involving stopping Prolia but inability to take bisphosphonates.

McCormick suggests getting a CTX blood test. @jheieck that could tell you how urgent it is to get a med to deal with rebound since you are not getting the next Prolia shot (thank heavens).

I just had my CTX done and it is low so I feel comfortable delaying my next Reclast to do some other medical things. Prolia of course is harder to take a break from., But McCormick suggests watching until the CTX starts going up after you stop Prolia to better time Reclast, and maybe that holds true for Evenity. with hormones it might not matter. What about raloifence which deals with hormone receptors?

Your doctor knows best. This is ONJ vs spinal fractures basically.

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Replies to "Evenity- at least a few months of it before it becomes anti-resorptive- might be of help..."

Thank you for your feedback it gives me a few options to ponder. Out of curiosity I went back and checked my last dexa scan taken May 2024. I was in shock to realize I have now moved to osteopenia category, I guess due to taking Prolia for 6 years? My lumbar spine T score is 0.9 and Z score is 3.0, my total hip T score is -1.1, and Z score is 0.4, my femoral neck T score is -2.3, and my Z score is -0.5. Conclusions indicate osteopenia now and NOT osteoporosis. My guess if is if I go off Prolia those numbers will change quite a bit. I do want to have a CTX blood test to see if I can have dental work in my future, since I am in a holding pattern right now with the two implants. I've never had a CTX blood test, to surprising given the fact that my bone health specialist knew that I was having extensive dental work. My oral surgeon never mentioned it either. Since I'm going to the endocrinologist in early January, I will find out if there's any way I can go off Prolia cold turkey. The bone health specialist wanted me to go on HRT, aka Evista, but I don't really like the side effects that I've read about at all, but I don't want to lose the obvious gains I've made all these years being on Prolia. My only other alternative would be to stay on Prolia and not have the dental work, just have a partial plate made That isn't my first choice, but it might be my safest choice, especially if I would like to transition completely off any drugs. Not easy choices here. I wish I had a crystal ball.