Pros /Cons of Prolia versus Tymlos for osteoporosis

I can’t adjust the pen. The kind I have is already pre-set for the 80 mcg. Also, I do have a pituitary tumor which is quite large, so my endocrinologist advised me to call my Neuro surgeon to get in for an MRI and see if anything has changed.

@windyshores , lidocaine helped a little bit in the past-5% patches by prescription. But for some reason not helping anymore. Tens unit helps more by distracting the mind. I bought one which operates via small remote control. I use 2-3 hours per day mostly in evening. I hate Tramadol. Not sure why it gives me headache and barely takes the edge off. I take 1 mg Clonazepam at night. I know that it is very bad mix, but doctor prescribed to me and I need to get some sleep. It would be nice be able to find something natural for sleeping at night . I hope that functional medicine can help somehow.I really don’t have where to go anymore. My endocrinologist categorically is against any steroid injections. I already did one and got no relief whatsoever.Nerve ablation didn’t work.There is some non opioid pain pill waiting for approval VX-5. Not approved yet. Another hope.Still not sure what to do after finishing Evenity and if Evenity contributes to so much pain. My friend is on Tymlos and has a lot of back pain as well. I know you liked this medication but everybody is different. I avoided all kind of pills almost all my life. And now I have to take so many different drugs. My body screams everyday -please stop.

@arlene1958 all Tymlos pens are adjustable. Move slowly to the 80mcg and hear the clicks. None of us have pens that are marked with any numbers other than 80mcg.

@arlene1958 you could try going down to 6 or 7 clicks on the adjustable pen, and over time move up. I was never able to take a full dose, staying at 7 clicks ultimately (6 clicks on a day I had something important to do) and still had a 20% gain in spine. For some reason I just could not tolerate the full dose even though it was only one click more than what I was doing,

Nausea with headaches sounds like migraine. Are you certain it comes from Tymlos? You could try skipping a day or two- my doctor always said that was okay. I did not have constipation from Tymlos.

@sunny65 it might be going to far to say I "liked" Tymos 🙂 I had side effects but they lasted only a few hours each time I injected and I had dramatic gains.

Have you tried a capsaicin patch? BioFreeze? For sleep I try to avoid clonazepam (I take 1/4 of the 0.5mg) and have been trying CBD and CBD/CBN. Melatonin in the past. I wake up at 3:30 am all the time!

I am sensitive to meds and foods and was amazed I could even tolerate a partial dose. Thank heavens! I tried to get on Forteo for years.

@windyshores, I been taking 0.5 mg Clonazepam for a while and doctor increased to 1 mg. I know it is very bad with Tramadol and overall just bad for you. I afraid to add CBD in a mix. How much Melatonin you been taking? I bought 10 mg and want to try. I tried bio freeze and it helped a little bit but irritated skin and after that I wasn’t able to use my tens unit. I want to stop Clonazepam. I tried to go back to 0,5 mg and didn’t work. I still trying to cut back and just quit and see how many nights I can go without a sleep. Even with 1 mg Clonazepam I sleep from 11pm to 3:30-4:00 am. That’s why I want to find good functional medicine doctor because they usually have some natural supplements. I feel Evenity not working for me because I am not able exercise. Just walking on treadmill for a 10 minutes at the time take a brake and then another 10 minutes. Pain takes all my energy and everything what I used to do before this started. I am always dizzy like 5 days after Evenity shot. Is this happened to you ? Or to anybody in this group?

Thank you. Then, I should try the 6 clicks for a few days then move to 7 til I get to the 80mcg?

HI @arlene1958 you could try that, yes. See if it helps!! Let us know!

As I wrote, I never really got to 80mcg but still went from severe to borderline osteoporosis.