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racing heartbeats, low oxygen and infection

MAC & Bronchiectasis | Last Active: Dec 17, 2024 | Replies (34)

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@wangling

@bayarea58, thank you.
It is interesting that you mentioned. I have been thinking about the same thing. I mentioned it to my pulmonologist. He doesn't think I need it now. But I think it is something nice to have just in case. I wonder if we purchase by ourselves, where to get the oxygen? Anybody use it occasionally to share the experiences?

Ling

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Replies to "@bayarea58, thank you. It is interesting that you mentioned. I have been thinking about the same..."

@wangling in the meantime maybe try one of the breathing apps. The ones where you follow the circles on inhaling, hold, exhaling. They might force you to remember to take a deep breath. Some people use them for anxiety. When we are suffering from a chest infection, it’s easy to stay in a cycle of shallow breathing. I’ve observed when I’m on an O2 monitor and I do lots of deep breathing the numbers improve. Just a thought. Hope it’s helpful.

@wangling my pulmonary rehab suggested this website: oximedical.com. They specifically recommended for travel oxygen, as I guess airlines have very specific requirements to fly which is more than what people have at home. From the brochure, which I don’t see anyway of posting, it looks like they have both travel and at home units, and they do rentals which may be more economical if using for a short time. The units are pretty expensive so to buy for short term use would probably not be a first choice. The website has a lot of useful information though it looks like you need a prescription from your doctor which makes sense. It’s not clear to me if your doctor doesn’t think supplemental oxygen would be helpful because you do not yet qualify for it under your insurance, or if it is a medical opinion. Sometimes parsing medical opinions from decisions based on coverage can be tricky for us patients. I will say many in my pulmonary rehab class would use supplemental oxygen provided by the facility occasionally to get their saturation levels up, maybe on days of congestion or bad weather, when they were not on oxygen regularly. It seemed like a really helpful tool. Again, just food for thought. I am not on oxygen and have no personal experience with the oximedical website. If you do reach out to oximedical, I was told to ask for Leo, who is apparently just a superb human being.