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I had TORS surgery at Mayo Jacksonville on June 25 with both tonsils removed and neck dissections on both sides. I had one lymph node involved on the right side, and was diagnosed as Stage 1 (HPV) While the first ten days were pretty miserable, I only lost four pounds, and was back on my feet pretty quickly. Thank goodness no radiation was recommended. It took about four months to start feeling myself again. I was more fatigued and there was definite weakness and limited motion on the right trapezius. I ended up doing PT for about six weeks to improve the range of motion and have been doing a fair amount of exercise to get the strength back as well. I'm now at about 98% on both counts, so very relieved. So far all of the scans and blood marker tests have been negative and I go back for a 6 month follow-up next month. It was an amazing team that found this early (I saw ENT on an unrelated issue and she said "Let's go through a cancer checklist while you're here...") Other than ongoing neck numbness, which seems to be slowly getting better, I'm back to my old (78 years) self. Feeling lucky and very grateful!

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Replies to "I had TORS surgery at Mayo Jacksonville on June 25 with both tonsils removed and neck..."

@kcaldaba
Hello, I had my surgery late January and started radiation in March, I’m curious what the determination was for recommending that you did not have radiation, I’m 2 weeks into it and it’s terrible already.