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Replies to "It’s amazing how every PMR and GCA story seems so different. I couldn’t tolerate ACTEMRA. It..."
Polymyalgia Rheumatica (PMR) | Last Active: Dec 16, 2024 | Replies (69)
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It’s amazing how every PMR and GCA story seems so different. I couldn’t tolerate ACTEMRA. It actually worsened my condition to pretty intolerable. Maybe I was allergic?? But the prednisone has been a blessing and my quality of life is great. No pain and no bad side effects. At 4 mg I can do this for the rest of my life and be happy. Go figure!!
Replies to "It’s amazing how every PMR and GCA story seems so different. I couldn’t tolerate ACTEMRA. It..."
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"At 4 mg I can do this for the rest of my life and be happy. Go figure!!"
Maybe 4 mg is the difference. I couldn't get anywhere near 4 mg for the first 10 years. I was still taking 10 mg when Actemra was started. My rheumatologist said if I only needed 3 mg he wouldn't have cared as much and would have never tried Actemra. I hate to say this, but he also said I was "too young" to take prednisone for the rest of my life.
I wasn't sure what age had to do with it. I didn't feel young and felt more like 100 instead of 65. Now I'm 70 and I feel like 70.