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@trspac

@windyshores - I just care about my health. Being that is is obvious I have an immune response causing inflammation it is concerning. Don’t want inflammation sitting around as this can cause further damage. Don’t care about a diagnosis, just want to be treated to resolve the underlying issue if possible. Treatment is the same with sjogrens that I am taking now but don’t want to have to be on pilocarpine forever. I have not had any further testing other than what has already been done to rule out sjogrens, lupus and connective tissue disease. As for monitoring, i am going to leave this up to my internist since rheumatologist has no reason to continue seeing me. I did see an allergist this past week and additional blood work is pending for vasculitis since she observed the angioedema in my mouth. Not sure yet if I will be looking into this further. For now, I will likely try Accupuncture and like you look into functional medicine but it is really costly so have to do my homework. Hope that it is working well for you.

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Replies to "@windyshores - I just care about my health. Being that is is obvious I have an..."

A lot of functional medicine is too expensive for me. @trspac how many rheumatologists have you seen? I hope you can find one who listens!