Spinal Stimulator removal after nine years concerned about potential p

Posted by californiabill @californiabill, Dec 24, 2023

Hi, I am considering removing my SCS after about 9 years. I had a new pulse unit installed in 2017 but I am concerned about adhesions when the lead in the dura is removed. It is a Precision Spectra from Boston Scientific so it has a long wire type lead up the inside of the spine in the dural space. Has anyone had one like this removed after a long or short time and did you have any problems?

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In reply to @salliesanford3134 "Did not help me at all." + (show)
@salliesanford3134

Did not help me at all.

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My Husband's test worked. Waiting for permanent insert Did you have test run first. Why did it take 9 years to see it didn't work

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Removal of spinal cord stimulators can be dangerous. I'm not a doctor and can't speak to your specific situation. However, for anyone considering a spinal cord stimulator, please read this article on their limited effectiveness, risks and better alternatives: https://www.paintreatmentdirectory.com/posts/spinal-cord-stimulators-high-risk-low-benefit

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I had mine removed with no problem. My stimulator did not help me. I had one of the first stimulators My body picked up the rhythm of the stimulator too quickly

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@cperlin

Removal of spinal cord stimulators can be dangerous. I'm not a doctor and can't speak to your specific situation. However, for anyone considering a spinal cord stimulator, please read this article on their limited effectiveness, risks and better alternatives: https://www.paintreatmentdirectory.com/posts/spinal-cord-stimulators-high-risk-low-benefit

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I will definitely research these options, I had a Sprint PNS stimulator implanted a month ago. I have not seen any improvement in my painful lumbar spine pain. My doctor said he could do nothing else, so now I'm looking for a second opinion. I plan to have the stimulator removed after the first of the year. I have DDD so I hope there is some solution out there. I can't stand or walk for any length of time. I just want some quality of life back!

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@besmith57 did you fail medicine treatment for chronic pain as your decision to move to an implanted stimulator? I’ve got DDD, spinal stenosis, chronic pain, PN, osteoporosis and use buprenorphine patch 24/7 and I’m as happy as I can be. I’m a retired nurse and I know the need for movement to relieve pain so exercise is my main acute pain reliever. I was needing 6 Percocet a day for breakthrough pain but substituting THC/CBD 25mg each 3x day keeps me from having breakthroughs. I know if I don’t move I will hurt and become stiff so I exercise 2x a day and walk 2 miles daily. PT tweaks help me to stay on track as new issues develop. Since you’re seeking to have the device removed get a physical medicine eval possibly before your procedure to get an idea of your sext steps afterward so you have a plan in place. And hopefully this will include a PT evaluation as well and once you get a home exercise program (HEP) don’t ever stop doing it. Good luck after your procedure.

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@jenatsky

@besmith57 did you fail medicine treatment for chronic pain as your decision to move to an implanted stimulator? I’ve got DDD, spinal stenosis, chronic pain, PN, osteoporosis and use buprenorphine patch 24/7 and I’m as happy as I can be. I’m a retired nurse and I know the need for movement to relieve pain so exercise is my main acute pain reliever. I was needing 6 Percocet a day for breakthrough pain but substituting THC/CBD 25mg each 3x day keeps me from having breakthroughs. I know if I don’t move I will hurt and become stiff so I exercise 2x a day and walk 2 miles daily. PT tweaks help me to stay on track as new issues develop. Since you’re seeking to have the device removed get a physical medicine eval possibly before your procedure to get an idea of your sext steps afterward so you have a plan in place. And hopefully this will include a PT evaluation as well and once you get a home exercise program (HEP) don’t ever stop doing it. Good luck after your procedure.

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I'm not able to exercise to help because walking and standing really hurt my back. My pain specialist won't prescribe any pain meds. I do take Lyrica, but it doesn't seem to help either. It sounds like we have the same conditions. Pain meds don't work for me. I've just been taking Tylenol Arthritis or ibuprofen. I think my polyfibromyalgia rhematica is back so I will probably have to start back on prednisone. My doctor basically said there's nothing else he will/or can do. After the first of the year, I will find another doctor. Doesn't that amount of THC/CBD make you feel high all the time? I take 5mg of it at night for sleep. So I really don't have a plan,

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I’m an old hippie and have used cannabis since I was in my teens. I no longer but buzzed but appreciate the pain relief. Exercise does hurt but the opposite sucks too. My HEP is using stretchy bands and floor exercises so being upright isn’t necessary for all of them. I’m sure PT could prescribe a program to fit your abilities.

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Exercise, is best thing for arachnoiditis. But I'm fused C3 thru my sacrum. Not able to do a lot. Have to use a walker just for balance. When you are in severe pain, it's difficult to figure out what to do. I can't get to the floor, obviously, can't bend over. I do squats & use 5 lb weights for arms & shoulders. having bowel incontinence. Already have permanent suprapubic catheter & get severe UTI's, drug resistant, requiring 5 days IV antibiotics. I have used cannabis for relaxation & sleep. But now, all of a sudden, weed giving me severe reaction & not sure, i can use anymore. Sometimes, i feel i am losing my mind. I start with a new counselor on January second. I have no support. My spinal nerves are ruined, bowel incontinence is a real trip. being evaluated for pain pump on the 9th. Really don't want it, but DEA, makes it impossible to get decent pain meds. Each of us is very different, depending on where we are, with this disease & other factors. I am only sleeping 4 hours, at the most. Unable to nap, have awful anxiety etc.. My prior education, as an RN, does not really help Does anyone know if we can contact DR Tennant, now that he's retired??? I need some guidance. My DDD , spinal fusions & now Arachnoiditis, have robbed me of 30 plus years. The isolation & lack of support don't help good luck to all with this condition laurenseavertson@q.com

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