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Newly diagnosed and scared

MAC & Bronchiectasis | Last Active: 5 days ago | Replies (26)
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@sueinmn

Hi Lorrie - Does the doctor have you doing daily airway clearance to help clear the mucus?
Did they advise you to have your hearing checked as well?
If the answer is no to both, the doc may not be very experienced in treating this infection, which is quite rare -not a condemnation of your doc.
How often is the doctor having you do sputum samples for culturing, so they can judge the pregress of your treatment?

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Replies to "Hi Lorrie - Does the doctor have you doing daily airway clearance to help clear the..."
lorrie48 | @lorrie48 | Dec 13 3:28pm

Hi, Sue. No daily airway clearance and no hearing checks ... not yet anyway. I do, however, try to cough deeply, almost forcing the cough up and out to work the lungs.

My doctor sounds like he's been around the block a time or two with MAC, but I do live in the Southwest where there seem to be fewer MAC cases. My cardio doctor, for one, was surprised by the diagnosis. He said it's more prevalent in the Northeast.

I've given two sputum samples in the last six months. I'll know more about the second when I see my doctor in four weeks.

I'll ask about the daily airway clearance and the hearing check.

Thanks for your feedback.

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