Hi
It's very frustrating.
I refused 'suppression of my TSH.' and RAI Treatment post Thyroidectomy. (Total with 12 lymphs removed with a dissection of the lymph bed (2 lymphs affected withe papillary cancer)
The Endocrinologist also tried to delay my operation until 6 months but my surgeon and anaesthetist said NO ASAP.
So I got to work things out with my lovely surgeon.
5 years 3 months down the track after stroke, coming up to 5 years in feb.
My medication was the cheap levo .. which comes in bulk but very difficult to keep my TSH where my surgeon wanted. as the 25mg was Synthroid I changed fully to that/ Advantages were supreme. Sealed container, kiddie lock, condensation pallet inside, easier to get 1 out at a time. Proved to be reliable in the dosage. So I take 2 and 1/2 50s as it is WHITE. I have allergy to sulphur and others have Sulphites and Aluminium. My rash is disappearing over time.
Try 50s.
Also if you read Br/Dr Gary Clayman he advocates low risk for further malignancy keep TSH to low normal. I keep mine at 1.5ish. On my 4th year In have 2 lymphs calcified 8 and 7 and a 19mm x 9mm? Thymus also calcified. Tests to see whether they are growing and a Pet scan where they didm't take up iodine so didm't light up - this investigation is inconclusive. Another 6 mthly CT Scan with iodine is ordered. The other thing to watch is the Thyroglubin serum and antibodies level but I understand its harder to use these when you have some thyroid left in.
I read that it is better to have the whole thyroid removed as like mine when surgeon saw only the carcinoma in right lobe, another saw specks in the left.
Although this is 'food for thought'. Please keeo this in mind but it should be seen eventually in tests.
Also are you taking your levo correctly.
4 hours from food or milk or iron. I have mine in early am. Then wait 1 hour after for food, no milk, iron.
I take the Synthroid under tongue. It dissolves within 20 mins. I take my B12 Solgar like that but they are sublingual muggets. There is one in synthyroid but not brought into NZ.
With above directions I should not have seaweed, soya, tofu, too many greens. Read all about Mr Gary as he is the top surgeon for thyroid in the world.
Sadly my surgeon is retiring but I will stay under a surgeon rather than an endocrimologist. No thanks,
She prescribed Metopolol at Stroke when I said NO it will make me breathless, It did and caused pauses at night. I struggled 1 year 5 months later my request for a heart specialist was met and I was changed then left. Beta Blockers don't control my heart Rate. I have damage now.
I hope that you are being checked via ultra-sound for any developing changes. Papillary grows 1mm a year!
Please take care. Joy. (NZ)