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Update on Progress
This is my update after posting my initial post about joining the brotherhood (reluctantly) and to discuss my PSMA results related to one lymph node lighting up slightly.
My local urologist said the lymph node is most likely cancer but they wouldn’t know for sure until they did pathology on the removed prostate. I suspected I would probably end up with surgery but was more concerned about the possibility of cancer elsewhere.
Thanks to the wonderful support and information I’ve received here I was able to get enough good info to ask the right questions on how I move forward. The local urologist doesn’t have enough experience for my liking. I finalized my appointment with the Mayo Clinic in Phoenix today. It’s next week. I’ve also scheduled an oncologist at Mayo for consult if needed for a little bit after next weeks appt. Today is the first day for a while I’ve felt like have started movement in the right direction. Makes me happy. Thanks Colleen and all for being there.
Jay
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Good for you for being your own advocate! I did the same. I was lucky to have a world class urologist that I'd used for a previous cancer, but even with that I still spoke to scores of doctors before I settled on my decision. We can feel well knowing that we might make a bad decision but that it is our own and not dictated by anyone else. I hope the very best outcome for you - and for me, as I'm getting it out in 5 weeks.
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3 ReactionsSounds like you are on a good track.
Best wishes
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1 ReactionYou are always your own best advocate! Congratulations, you have now put your health decisions into the best hands possible, your own. 🙂
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3 ReactionsJay: That’s great that you are starting to get your hands around the issues. Were you able to get the decipher test? As you have probably read, it does make a difference in your doctors recommendations as to what treatments you receive.