← Return to Newly diagnosed and scared

Discussion

Newly diagnosed and scared

MAC & Bronchiectasis | Last Active: 5 days ago | Replies (26)

Comment receiving replies
@lorrie48

melb06, Hi. You're smart. I was diagnosed with MAC last spring, but it wasn't until today that I thought to look online for support groups. I was scared in the beginning, too, more about the drug regimen than the actual disease since at the time I was non-symptomatic. The side effects of the antibiotics haven't been terrible. Over the last six months, I've learned to expect fatigue (and sometimes chills) the day after I take my meds. Blood work has indicated no worrisome changes, and my teeth have not turned orange. Yay! I expect the next time I see my pulmonologist, he will want me to have my eyes checked. I also expect he'll want to increase my dosages again since the coughing has gotten worse, not better. May all go well for you as you begin the trek.

Jump to this post


Replies to "melb06, Hi. You're smart. I was diagnosed with MAC last spring, but it wasn't until today..."

Hi Lorrie - Does the doctor have you doing daily airway clearance to help clear the mucus?
Did they advise you to have your hearing checked as well?
If the answer is no to both, the doc may not be very experienced in treating this infection, which is quite rare -not a condemnation of your doc.
How often is the doctor having you do sputum samples for culturing, so they can judge the pregress of your treatment?