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Options if MAC goes untreated

MAC & Bronchiectasis | Last Active: Dec 15, 2024 | Replies (96)

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@blm1007blm1007

Jill-
There is another gal from NY at National Jewish now or just finishing who has been on this site several times.
I was at NJH in October 2023. I was glad I went in order to have had all the tests they performed that would have taken months to arrange locally. All tests for me were unremarkable other than a second confirmation of my having Bronchiectasis (no cavity, mild BE) and then the first confirmation of a mild case of MAI/MAC.
I believe for those with other tests having come back positive by local pulmonologists, such as a carrier for CF, I think that National Jewish would be a great, if not best, facility to be involved with due to all their years and years of dealing with extensive health problems related to the lungs. This you probably read and why you made your decision to go there.
For me at NJH and Denver it was much like a medical vacation due to the ease of the short five minute drive from the Marriot Residence Inn in Cherry Creek and all the wonderful things that were in the area of the Cherry Creek area of Denver...example Whole Foods and Sprouts and good restaurants if one wanted to venture out to eat.
In one of the threads a couple of people recently gave an answer to the question of how long it possibly takes to clear MAI/MAC without antibiotics. For those who are successful, I believe from what was said...it takes approximately two years. However, please confirm that with your research and readings.
I also am trying to rid myself of the MAI without the antibiotics. Hope I can do it with what I am doing.
Question: What are you doing for yourself when you say you are doing airway clearance? Have you been doing the various methods of airway clearance besides saline, Aerobika etc. How are you trying to break up any mucus or mucus plugs to get them up and out.? I believe you did watch the video Sue sent you that Doctor McShane made.
Barbara

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Replies to "Jill- There is another gal from NY at National Jewish now or just finishing who has..."

Hi Barbara -

Thank you so much for this info about NJH and the process at Denver. It a sounds very promising. I have my intake interview on Monday so should know more.

As for my airway clearance, I pretty much follow the protocol McShane outlines in her video. The one thing I added as a result of her presentation was starting with the deep breath hold in the beginning. I take 600 mg of NAC two times per day and I find that makes a huge difference in my sputum production. (I couldn’t get any sputum up before.) after nebulizing, I do 10 slow breaths with the Aerobica on my left side, followed by huff coughs and spitting (gross 🤮) and then 10 breaths on my right side followed by coughs and 🤮 and then 10 breaths sitting straight up followed by coughs and 🤮. Then I start the rotation again - left side, right side, sitting straight up. If I feel there is more mucous, I’ll continue a bit, but I find those 60 breaths with coughing pretty much does the trick!

Sorry for the gross details, but we all know this comes with the territory. 🤣

Peace,
Jill