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← Return to Prolia discontinuation
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Hi I've posted a few times about my dilemma with trying to transition from Prolia to something else due to complications with dental work and possibility of ONJ, but I've never really read the breakdown of what happens during rebound when you go off of Prolia. This is pretty scary given the fact that I have been on Prolia for 6 years, meaning I've had at least 12 injections if not 13. I am due for a Prolia shot end of December early January but I'm waiting to get into the endocrinologist to evaluate my parathyroid activity, which is elevated, and to see what my options are for weaning off Prolia. This doesn't sound to promising to me. Does anyone on the thread know just how long someone can be on Prolia before there are other long-term effects? I'm only 70 years old. What if I stay on Prolia till I croak? That could be another 15 years and 30 more shots?? Why was this medication even put on the market? Certainly wasn't told that people who have extensive dental work should not go on it, not by my doctor... I found out on my own.
Replies to "Hi I've posted a few times about my dilemma with trying to transition from Prolia to..."
I am in your exact situation. What did you decide?
The trouble is there is no data. Drs and endocrinologist, l think are flying blind. So no studies on which bisphophonate is most effective, how long one has to be on the bisphophonate, or as you mention exactly how many years that we have been on Prolia?? Like you l have asked drs if they have patients who have successfully transitioned and no definite answer.
I agree with you who said why is it still on the market. Here in Australia, l have read AMGEN now have 76% of the market as it seems to have become the Dr's choice. All very distressing for those of us trying to get off it.
Just an update on my post from several months ago. After having a nuclear
medicine test, a tumor was discovered on one of my parathyroid glands and
I'm in the process of scheduling surgery with the ENT. I did get a
subsequent Prolia injection mid January, so it was one month overdue, but I
didn't suffer any consequences from going that long between doses. I have
plans to have one of the two implants reinstalled in the late June 2025
time frame, which will put me out five and a half months out from my last
probably injection. From what I have read and heard, there is supposedly a
window of time between 5 and 1/2 months and 6 months after your last
probably is shot where you can have dental work done safely and I'm going
to give it one more shot. After I have my parathyroid gland removed,
endocrinologist will be monitoring my blood levels to see if my PHP hormone
and calcium levels drop, and my phosphorus level comes up. If these numbers
start to look good is possible I can move to reclast for one year to wean
off Prolia. It is possible I may still have to have my July 2025 Prolia
injection. But, things are more hopeful for me then they were 6 months ago.
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I am just wondering, did you find another option yet? I had 2 Prolia injections and stopped because of a rash that developed , grew and lingered. So now I am on Alendroniate (Fosamax)
and not liking it much. I am 71 y.o. and have similar concerns.