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MAC & Bronchiectasis | Last Active: 5 days ago | Replies (26)
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← Return to Newly diagnosed and scared
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Mary- How do you know your 'bacterial load was reduced"? Do you see it yourself on the paperwork test results...... and how is it stated? How do they show on the sputum test paperwork results your bacterial load...as X amount of colonies or like 1+???
Does your doctor specifically tell you that your bacterial load has reduced?
I ask because I am somewhat disappointed with the type of communication I got during my office visit(s). If it weren't for my being able to read the test results on MyChart I would not have known I had improvement as shown on the last C Scan. I was only told, while the doctor was looking at the C Scan, that I had a new area with plugging, lower left lobe. She did not tell me of any improvement(s) be it with the submitted sputum test results or the C Scan when I had my last visit. No mention of what is or is not happening with my bacterial load, just that I still have MAI.
We need all the encouragement we can get and knowing I was doing something right to have improvement showing on the results of the C Scan would have been nice to hear from the doctor verses my needed due diligence I had to do by pulling up the MyChart to find out at home, after my office, that I had improvement.
I can't imagine fully why she would not tell me also the positive, as she looked at the C Scan results. I wonder if she has reasons not to tell of the positive results along with the negative as she was observing it all. I guess there could be a dozen reasons. Oh well, I may have my expectations set to high also. Then again next time my question will be "Is there any improvement showing on the C Scan or with the sputum test results related to the bacterial load.?
Barbara