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Gleason 6 But high decipher score.

Prostate Cancer | Last Active: Dec 13, 2024 | Replies (52)

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@cs2024

Hi hirejohn my situation is very similar to yours. I’m 67 years old and have been on active surveillance for 5 years. All previous biopsies had been 3+3=6 in 3-5 out of 14 samples usually around 10%. My last biopsies came back as 3+4=7 in 5 samples. So I sent my slides to John Hopkins for a second opinion. By the way it is a very easy process and my out of pocket was some where around $ 200.00. John Hopkins said all samples were 3+3=6. So that lead me to getting the decipher test which came back in the high range. And that’s what drives me crazy about this whole process. After weighing all my options I went with 28 sessions of IMRT which I finished on October 24 2024. I know we all can have different experiences but for me the bladder prep was the most challenging. I also changed my diet to high protein low gassy foods and kept up my exercising walking 5-6 miles daily. My side effects were pretty mild and by 2 weeks after treatment things were much better. Some people have strong opinions on what direction to take I don’t. This is a very personal battle and you are doing the right thing by asking questions and checking on others experiences. I wish you the very best. Hang in there.

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Replies to "Hi hirejohn my situation is very similar to yours. I’m 67 years old and have been..."

Many thanks, cs2024. Very helpful and very much appreciated.
All the best to you as well.

Hi cs2024 - Just a quick follow up. When reviewing this thread, it seemed like the majority of folks like us (low risk clinical markers with high Decipher risk), opted for surgery. Just curious why you opted for IMRT. As you mentioned, just trying to gather as much information as possible before making this rather difficult decision. Thanks again for weighing in earlier.