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@mindygirl62

I definitely have. That idea about the cooler beside your bed with ice packs is a brilliant idea! My room is at 45° and I'm still hot! What is autonomic nervous system testing. Of the million times I have talked to docs about this, and other autonomic issues, no one has suggested that. I am in New Hampshire, so I don't go to Mayo

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Replies to "I definitely have. That idea about the cooler beside your bed with ice packs is a..."

You need to find a cardiologist or neurologist who specializes in Dysautonomia.

I’m in Canada, had no luck, I travelled to PV, Mexico where I found a cardiologist who gave me the tilt table test at the hospital, and full examination. I have been very impressed by the care I’ve received from doctors in Puerto Vallarta. It really gave me so much hope, to know that Covid causes these other illnesses. We are not crazy, these a very real and symptoms, that may have some already proven treatments.

I also don't go to Mayo either. I did undergo autonomic nervous system testing, but in spite of symptoms did not end of with POTS or a related diagnosis. In addition to the ice packs, I have added cooling towels to my overnight regimen. They're meant for athletes, but stay quite cold all night. I have the towel in a bowel on the bedside table, as I they are convenient if I wake up overheated, and have a choice to quickly cool my neck, forehead, etc. They're great when I don't quite need the ice packs.