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@maryvc

We have many friends who pick my husband S up for lunches, workouts, dinners, days out on field trips etc. Our children are so involved with their own lives they have not spent a whole day with their Dad. My oldest daughter and her husband did have him for a few nights last year while I went away.
I know this will not last as S progresses and is more difficult to be with, but for now people enjoy him and he enjoys people.
Many of our friends are also getting older and more health problems. Sometimes when people ask if there is anything they can do to help, I say forgive me for not being there for you, not sending cards or meals, as I have my hands full.
I’m tired today. He was up much of the night wanting to shave, brush his teeth and take a shower at 3:00 AM.
He is spending the day with his best friend and me with my girlfriends for lunch and Maj. we are really both exhausted.
Had a raw discussion this morning about how we can handle this.
I wish I could be there for you.
I feel like I need a support group just for spouses.

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Replies to "We have many friends who pick my husband S up for lunches, workouts, dinners, days out..."

Funny I should read this now, it's 10:00 a.m. and I'm exhausted from hubby wanting coffee/food at 3:00 a.m. Night and day have no meaning to him now. He doesn't understand why I need so much sleep or I'm always tired. Can't remember the last time I got a full night's sleep.

He doesn't want anyone else here and when I do hire a caregiver he sees them as a housekeeper and still calls me when he needs something. Leaving the house doesn't work, he gets very scared and nervous and becomes angry at me when I return.

How do others deal with this?