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Update on my diagnosis and treatment

MAC & Bronchiectasis | Last Active: Dec 18, 2024 | Replies (13)

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@lvnl

I am 69 and have always been healthy & very active other than Crohn's which is under control w Humira (Crohn's & bronchiectasis are associated, not clear why). Was dx incidentally w BE 2012, "idiopathic", stable & asymptomatic til I started having chronic dry cough & ended up eventually w BE/NTM specialists who did all baseline blood work you are probably getting & then positive for MAC. Someone here said "we run away from our dx" & I recognized that! I am treating in a study but still have to deal w "fight or flight" re health issues. Luckily my condition is mild but the fatigue is challenging!

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Replies to "I am 69 and have always been healthy & very active other than Crohn's which is..."

It truly makes me feel better that I am normal in some ways with this. I've had medical issues in the past that were one in a million.

A quick question: what do the abbreviations mean? dx mainly. I believe BE/NTM is the acronym for this infection.