Connect
← Return to How do you cope with Mixed Connective Tissue Disease (MCTD)?
Discussion
How do you cope with Mixed Connective Tissue Disease (MCTD)?
Autoimmune Diseases | Last Active: 2 days ago | Replies (107)Comment receiving replies
Thank you for your response. A little of good information. You can do cucumbers??? I'm completely lectin intolerant. I seemed to have gotten through my first flare (9 months..)... i have a strong belief that I am swimming in the gamet... rheumatoid, lupus, scleroderma, myositis, and Sjogrens.... at minimum... I dont have a lot to compare to but I think im getting nailed... but I seem to be managing... all day long I'm evaluating what I need to adjust... right now I seem to have respiratory inflammation... its a lot... its nice to know we have others to connect with. I greatly appreciate this.
Replies to "Thank you for your response. A little of good information. You can do cucumbers??? I'm completely..."
Yes, MCTD is an odd duck. I get respiratory inflammation as well, hard to breathe and stabbing pain in my left chest, they've chalked it up to pleurisy. Joint pain, tissue pain, esophageal dismotility , digestion kind of shuts down, weak urine stream, extreme fatigue , my vision becomes weaker , giant cell enteritis. It encompasses so many systems that it's hard to figure out what doesn't hurt. I now also have severe scoliosis and low bone density. No matter , I've been able to shut these flares down ( sometimes 6 weeks) then get back to long walks and Youtube aerobic work outs to build my strength and endurance. You are your biggest and most important project . Cucumber is fine , I'm ok with the nightshade vegetables as well. Blended vegetables green drink will provide your digestion with much needed prebiotics. Your immune system is 75% in your gut
So it's a good place to begin. It may not go away but you can make your experience with autoimmune failure much better. You can do it.
Hugs
Connect
'A lot of good info'