Hopefully you've been able to find some comfort and solutions. I've had it for 20 years. Imuran and Plaquenil low doses daily and advil and Tylenol when needed. Epsom salt baths, especially during flares and bed rest and good books. Patience with yourself and a lower stress life are essential . Yoga, meditation, green drink every morning kale, cucumber, ginger block, apple, pear, orange, made with a little pineapple juice and water. Make enough for 3 days, store in fridge. Limit processed foods, eat more simply and shore up your digestion with plain organic yogurt and kefir. Will help with stomach issues including Gerd. Oh yes 40 mg tecta when needed. Keep active , 15, 20, 30 + Youtube exercise videos to increase your heart rate and flexibility as daily as possible. Try Glutathione and alphalipoic acid daily which will begin to help with the fatigue. I also take NAC for my interstitial lung disease. I take Calcium, vitamin D , magnesium, ashwaganda , vitamin E, Siberia ginseng , multivitamin, multi B, milk thistle. Flares effect almost every system, eyes, digestion , ability to pee, skin rashes, cause Pericarditis and electrifying skin muscle and joint pain like fireworks in my tissues. Everything hurts but I'm my biggest project and go on prednisone until it passes. So far I've been lucky, rest and begin to feel ok until the next unexpected flare. Any infection with me will trigger one. Good days and bad days. Your friends and family will begin to understand the mystery of MCTD, share your experiences it creates understanding.
You need to put your health management close to the top of your list to calm the symptoms so you can cope. Try different things , eat well, be calm you can find ways to manage and get a life back
Use your free will to chose happy and get control back. You can do it. Hugs.