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@mikeswen

I had tors and a neck dissection on 10/29/24. I was in the hospital for two days and then stayed in the hotel for over 14 days as my surgeon, Dr. Van Abel suggested I stay in the area in case of bleeding. Dr. Van Abel does the work of the Lord. I really feel I was sent to her from up above. Many people consider their sports idols heroes, but none of us have ever needed a sports figure, but many of us need a hero like her. I am six weeks now past my surgery and I am eating and swallowing at probably 98% before. my left shoulder is weak, as they mentioned as a possible problem with the neck dissection, when I open my mouth, my lower left lip doesn’t seem to go down far enough and when I eat, I need to pull it down or move to the right side, otherwise I’ll bite my lip. My neck is numb from my jaw down to where the incision was made also. My hope is most of these things will go away overtime. After my surgery, the pathology on my lymph nodes and the tumor were negative (no chemo or radiation was needed) , but I have a PET scan in another two months and I’m hoping that is negative and then maybe I’m out of the woods. If you are having this surgery, it will be rough the first couple weeks as far as eating. Amazingly though I never took any pain medication after I left the hospital in two days. I thought the pain where the tumor was cut out would be much worse than what it was. My tumor was at the base of my tongue. everybody, and I mean, everybody was so amazing here at the Mayo Clinic. I am so lucky I ended up here as I was referred to Madison Wisconsin by my oncologist first and they told me there they wouldn’t even do tors on me. They told me they were going to cut my neck open and access to to her that way, but I was to wait a week for their tumor board decision and then they wanted to use radiation. This was certainly not the correct decision for me.

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Replies to "I had tors and a neck dissection on 10/29/24. I was in the hospital for two..."

I had TORS surgery April 2023 to remove base of tongue tumor ( negative margins during surgery). Neck dissection as well. The lymph nodes on one side of Neck were removed and sent off to Pathology. I had 30 rounds of Proton Radiation June 2023 to "cleanup" any cancer that may have been left behind from HPV16 base of tongue and Few Lymph nodes on one side of Neck . Also I had NO Chemo. I had very numb jawline and neck as well. I also had lip issue on one side where I would pull down some to eat. The good news is now the lip issue has gone ahead as nerves start to heal. My jaw numbness is about 75% better today. I understand depending on what neck nerves were cut or damaged it could affect shoulder raising arm movement. Fournately , I didnt have that issue and I cannot speak about that or healing time. l am stunned you can swallow at this early stage so well. That is awesome. I am sure your upcoming PET scan will not show anything negative. Yes I truly believe these Doctors are doing the Lords work. Merry Christmas to you.

Hi @mikeswen and welcome to the head and neck cancer group. Your insight and experience with TORS is very welcome in this group as TORS is becoming more and more commonplace. I also chose Mayo over UW Madison and am very satisfied with the outcome of my mandible surgery, which was required due to osteoradionecrosis from all the wonderful radiation I had years prior.
When I went through cancer treatment years ago, TORS was still in it's infancy and going by several monickers, Da Vinci for one, a rather stupid name if you know Italian in my opinion. Anyway the process and machines have come a long way in a few short years and have proven far less invasive than previous surgical techniques.
Keep us updated on your progress either by jumping back on this discussion or starting one of your own. It really helps others. Good healing.