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@sharonsturdivan

Hello @lls8000
I saw the new oncologist yesterday. What a difference! Here's what I learned.
1) The combo immunotherapy that the I had on Halloween(from other doctor) is NOT approved in any studies to be used for stage 2B, even though I was assured that it was and was also known to cause the ground glass that can be fatal.
2) The last doctor put me on 80 mg of prednisone (for the treatment of the ground glass) for 7 days and wanted to stop it when it ran out without decreasing the dose and just restart the immunotherapy.

The new plan is :
1) Reduce the amount of prednisone slowly over the next 2 weeks.
2) Do one round of the combo immunotherapy (he found where that had been approved but ONLY for one round. Never for 4 as was planned). Will also add low dose prednisone if needed between treatment.
3) Do one round of one of the immunotherapies only 4 weeks before surgery then another round 2 weeks before surgery.

I am finally feeling safe in a doctors hands.

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Replies to "Hello @lls8000 I saw the new oncologist yesterday. What a difference! Here's what I learned. 1)..."

Oh Sharon (@sharonsturdivan) that's great news! I'm so glad that you are getting the care that you need and deserve. It sounds like the new doc is already on top of helping to navigate you through that next round of combo immunotherapy by watching for side effects. Happy for you!