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Anyone here have Cold Agglutinin Disease

Autoimmune Diseases | Last Active: Feb 12 2:54am | Replies (11)

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@drdixievet310

I have primary Cold Agglutinin Disease. I was diagnosed with AIHA in 2014 and was told about CAD in 2021. I have had many blood transfusions and Rituxin infusions since 2014. My disease appears to be getting worse because now I am in hemolytic crisis every year and sometimes less than a year. I have never fully had a workup for this disease. I am desperately looking for a CAD expert in the Ohio area. Any suggestions???

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Replies to "I have primary Cold Agglutinin Disease. I was diagnosed with AIHA in 2014 and was told..."

Welcome @drdixievet310, The Cold Agglutinin Disease Foundation lists some specialist for the Ohio area on their website here - https://coldagglutinindisease.org/specialists. Have you considered seeking help at a teaching hospital or major health facility like Mayo Clinic?