1. < Osteoporosis & Bone Health

Discontinuing Prolia (denosumab): How can it be done safely?

Posted by sheilad1 @sheilad1, Oct 27 8:28am

A friend of mine had osteopenia and her doctor put her on Fosamax despite My showing her the studies say not to. They transitioned Hard to pro Leah because it was “easier“ getting a shot twice a year. Over Covid She need a dental work and went off the prolia. The dental work got dragged out because of Covid And her numbers were in the toilet and suddenly she had a severe chance of a fracture. She went back on prolia and I nagged her endlessly To get a tubular bone score.
The TBS was excellent her overall chances of a fracture Is now very low.
She asked her doctor how she could go off Prolia now and he said no you should stay on it. That’s why your tubular bone score was so good. Which is ridiculous.
She wanted to other specialist and no one had a suggestion as to how she could get off Prolia other than to transition to Fosamax, which she doesn’t want to take either.
Another doctor said she could just stop taking prolia and bone density tests.
Has anyone here ever successfully gotten off all drugs?

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

deblb | @deblb | Dec 11 11:08am
In reply to @susanjane77 "I have been on Reclast for 5 or 6 years with no side effects. My endo..." + (show)
@susanjane77

I have been on Reclast for 5 or 6 years with no side effects. My endo was not thrilled with my latest DEXA score so now i will be taking Prolia shots. She prefer Prolia over Evenity.
I was told that you can only take so many years of Reclast, thus, it might be time to change years of the scores. Interested in hearing from anyone that has taken Prolia. I realize we all are different and some may have side effects while others not (my situation with Reclast..rather stay on it but if not working…try something else). I have been very lucky that i have had no fractures but again my DEXA did not show improvement😢

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you might want to check out the Prolia side effects group on FB, many people talk about the Prolia trap and side effects of that drug. Please do you research before going on Prolia

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1 reply
susanjane77 | @susanjane77 | Dec 11 11:37am
In reply to @deblb "you might want to check out the Prolia side effects group on FB, many people talk..." + (show)
@deblb

you might want to check out the Prolia side effects group on FB, many people talk about the Prolia trap and side effects of that drug. Please do you research before going on Prolia

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Thank you for your note. I have done extensive research and do not need to reviews from a Facebook group. Everyone has their own reactions to every drug on the market. I took Reclast for years with no side effects yet many had them.
So, again, thank you for your suggestion but as i stated i have done my research.

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windyshores | @windyshores | Dec 11 3:02pm
In reply to @susanjane77 "Who is Dr. Ben Leder? I am suspicious of any doctor with a you tube site!" + (show)
@susanjane77

Who is Dr. Ben Leder? I am suspicious of any doctor with a you tube site!

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@susanjane77 Dr. Ben Leder is an endocrinologist and researcher at one of the top hospitals in the country- MGH. He does not have a YouTube website! He has been interviewed a couple of times and those interviews are posted.

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1 reply
gravity3 | @gravity3 | Dec 12 10:45am
In reply to @susanjane77 "Thank you so much for this! I had been on Reclast for several years and my..." + (show)
@susanjane77

Thank you so much for this! I had been on Reclast for several years and my last DEXA did not show any improvements. Thus, my endo and I discussed trying something else. He said that he has seen excellent results with Prolia with a side note that I will be on it for the rest of my life. I had my first Prolia shot and had no side effects. Let’s hope that continues. Had none with Reclast as well. I have never fallen, no fractures, etc.

Everyone seems to be afraid of Prolia. I trust my doctor as he said that he would tell his mother to take it when and if needed. Shopping around for a doctor to get the answers you want because you are reading so many articles is not a good thing. Who is writing the article? Doing the research? There is a ton of misinformation out there!!

When i have any doctor’s appointment, I ask a ton of questions! I am not looking for the answer I want but the reason why a certain drug is recommended for me. I have already done my research before I see the doctor. As i mentioned, you have to be so careful with the research out there and this is coming from someone who was in the healthcare business. I apologize for ranting on and on but people, stop shopping around for doctors to get the drug you think is right for you or for answers you want to hear.

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Have you already had a bone building medication such as tymlos, forteo or evenity?

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1 reply
susanjane77 | @susanjane77 | Dec 12 1:19pm
In reply to @windyshores "@susanjane77 Dr. Ben Leder is an endocrinologist and researcher at one of the top hospitals in..." + (show)
@windyshores

@susanjane77 Dr. Ben Leder is an endocrinologist and researcher at one of the top hospitals in the country- MGH. He does not have a YouTube website! He has been interviewed a couple of times and those interviews are posted.

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Thank you for info on him. Guess i was confusing him with another doctor mentioned here. I will check him out. Thanks again!

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susanjane77 | @susanjane77 | Dec 12 1:22pm
In reply to @gravity3 "Have you already had a bone building medication such as tymlos, forteo or evenity?" + (show)
@gravity3

Have you already had a bone building medication such as tymlos, forteo or evenity?

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No, I was on Reclast for years but there is only so many years you can be on it. My doctor has now me taking Prolia shots. I trust his opinion 1001%.

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